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	<title>Mito-Kids</title>
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	<link>http://mitokids.wordpress.com</link>
	<description>Living with Mitochondria</description>
	<lastBuildDate>Mon, 26 Apr 2010 20:50:30 +0000</lastBuildDate>
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		<title>Mito-Kids</title>
		<link>http://mitokids.wordpress.com</link>
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		<item>
		<title>ASL Happy Birthday</title>
		<link>http://mitokids.wordpress.com/2010/04/26/asl-happy-birthday/</link>
		<comments>http://mitokids.wordpress.com/2010/04/26/asl-happy-birthday/#comments</comments>
		<pubDate>Mon, 26 Apr 2010 20:50:30 +0000</pubDate>
		<dc:creator>mitokids</dc:creator>
				<category><![CDATA[Uncategorized]]></category>

		<guid isPermaLink="false">http://mitokids.wordpress.com/2010/04/26/asl-happy-birthday/</guid>
		<description><![CDATA[The Signing Sister wish their Pa (Grandfather) a happy birthday from the Academic bowl at Gallaudet University in Washington DC.<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=mitokids.wordpress.com&amp;blog=6312902&amp;post=179&amp;subd=mitokids&amp;ref=&amp;feed=1" width="1" height="1" />]]></description>
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<div class="blip_description"><span><span>The Signing Sister wish their Pa (Grandfather) a happy birthday from the Academic bowl at Gallaudet University in Washington DC.</span></span></div>
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	</item>
		<item>
		<title>Oprah&#8217;s Doctors Show Why Does Your Energy Level Fluctuate?</title>
		<link>http://mitokids.wordpress.com/2010/02/07/oprahs-doctors-show-why-does-your-energy-level-fluctuate/</link>
		<comments>http://mitokids.wordpress.com/2010/02/07/oprahs-doctors-show-why-does-your-energy-level-fluctuate/#comments</comments>
		<pubDate>Sun, 07 Feb 2010 14:42:42 +0000</pubDate>
		<dc:creator>mitokids</dc:creator>
				<category><![CDATA[Uncategorized]]></category>
		<category><![CDATA[Alzheimer disease]]></category>
		<category><![CDATA[autism spectrum disorders]]></category>
		<category><![CDATA[diabetes]]></category>
		<category><![CDATA[epilepsy]]></category>
		<category><![CDATA[mitochondria]]></category>

		<guid isPermaLink="false">http://mitokids.wordpress.com/?p=175</guid>
		<description><![CDATA[Are you feeling sluggish? Running on empty? You might be experiencing one of four common problems that leave your body functioning inefficiently. Get Dr. Oz and Dr. Michael Roizen's tips to battle fatigue.<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=mitokids.wordpress.com&amp;blog=6312902&amp;post=175&amp;subd=mitokids&amp;ref=&amp;feed=1" width="1" height="1" />]]></description>
			<content:encoded><![CDATA[<p>Here is a great video from Oprah&#8217;s favorite doctors.  It isnt Mitochondrial specific but they mention &#8220;ATP&#8221; so it reaches out to the more common consumer.</p>
<p>Why Does Your Energy Level Fluctuate? Video<br />
Are you feeling sluggish? Running on empty? You might be experiencing one of four common problems that leave your body functioning inefficiently. Get Dr. Oz and Dr. Michael Roizen&#8217;s tips to battle fatigue.</p>
<p><a href="http://www.oprah.com/health/Dr-Oz-Reveals-Common-Energy-Problems-Video">http://www.oprah.com/health/Dr-Oz-Reveals-Common-Energy-Problems-Video</a></p>
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			<media:title type="html">mitokids</media:title>
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		<item>
		<title>Meeting of Mito-Moms, &amp; Dads &amp; Cousins etc</title>
		<link>http://mitokids.wordpress.com/2010/02/01/meeting-of-mito-moms-dads-cousins-etc/</link>
		<comments>http://mitokids.wordpress.com/2010/02/01/meeting-of-mito-moms-dads-cousins-etc/#comments</comments>
		<pubDate>Mon, 01 Feb 2010 20:19:34 +0000</pubDate>
		<dc:creator>mitokids</dc:creator>
				<category><![CDATA[Uncategorized]]></category>
		<category><![CDATA[Alzheimer disease]]></category>
		<category><![CDATA[autism spectrum disorders]]></category>
		<category><![CDATA[deaf]]></category>
		<category><![CDATA[diabetes]]></category>
		<category><![CDATA[Documentary]]></category>
		<category><![CDATA[epilepsy]]></category>
		<category><![CDATA[Marc Dole]]></category>
		<category><![CDATA[mito-kids]]></category>
		<category><![CDATA[MitoAction]]></category>
		<category><![CDATA[mitochondria]]></category>

		<guid isPermaLink="false">http://mitokids.wordpress.com/?p=171</guid>
		<description><![CDATA[Mito-Kids is looking for people to get involved! We invite you to join us in our effort to bring attention to the subject of Mitochondrial disease through the production of the feature film &#8220;Mito-Kids.&#8221; www.Mito-Kids.com This week is the first official week that Connie Bottinelli as Executive Producer, and Darren Dodge as Associate Producer. They [...]<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=mitokids.wordpress.com&amp;blog=6312902&amp;post=171&amp;subd=mitokids&amp;ref=&amp;feed=1" width="1" height="1" />]]></description>
			<content:encoded><![CDATA[<p><a href="http://mitokids.files.wordpress.com/2010/02/dsc_1909.jpg"><img src="http://mitokids.files.wordpress.com/2010/02/dsc_1909.jpg?w=300&#038;h=199" alt="" title="Britney" width="300" height="199" class="alignright size-medium wp-image-172" /></a>Mito-Kids is looking for people to get involved! We invite you to join us in our effort to bring attention to the subject of Mitochondrial disease through the production of the feature film &#8220;Mito-Kids.&#8221; www.Mito-Kids.com</p>
<p>This week is the first official week that Connie Bottinelli as Executive Producer, and Darren Dodge as Associate Producer.  They will be joining the award winning team of Karlina Lyons, and Wanda &amp; Marc Dole and all the great people that have helped get us this far.</p>
<p>We are looking for people with marketing experience and for people to research into everything from potential corporate sponsors to current medical information on Mitochondrial disease.</p>
<p>We are also looking for people without marketing experience but have the drive to help us get this project in the public eye.</p>
<p>Mito-Kids works with the local non-profit Annie&#8217;s Angels to raise funds that will help alleviate the costs of production.  We are in the process of setting up an LLC  for potential investors as we develop this groundbreaking film.</p>
<p>We would like to have a kick off meeting this weekend on either Saturday afternoon at the Hatchling Ballroom at 3 Congress St in Portsmouth, NH. Please let us know if you are interested and if you are available to attend.  if you are interested but cannot attend please email us your skype or other IM name and we will try and do a live stream of the meeting.</p>
<p>please email us <a href="mailto:mitokids@gmail.com">mitokids@gmail.com</a> to RSVP and you can also RSVP on our facebook fan page.</p>
<p><a href="http://www.facebook.com/home.php#/mitokids?ref=ts"> http://www.facebook.com/home.php#/mitokids?ref=ts</a></p>
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			<media:title type="html">Britney</media:title>
		</media:content>
	</item>
		<item>
		<title>The Gossip Lady visits Hatchling and discusses Mito-Kids</title>
		<link>http://mitokids.wordpress.com/2009/10/20/the-gossip-lady-visits-hatchling-and-discusses-mito-kids/</link>
		<comments>http://mitokids.wordpress.com/2009/10/20/the-gossip-lady-visits-hatchling-and-discusses-mito-kids/#comments</comments>
		<pubDate>Tue, 20 Oct 2009 20:01:31 +0000</pubDate>
		<dc:creator>mitokids</dc:creator>
				<category><![CDATA[Video]]></category>
		<category><![CDATA[Alzheimer disease]]></category>
		<category><![CDATA[autism spectrum disorders]]></category>
		<category><![CDATA[deaf]]></category>
		<category><![CDATA[diabetes]]></category>
		<category><![CDATA[Documentary]]></category>
		<category><![CDATA[epilepsy]]></category>
		<category><![CDATA[film festival]]></category>
		<category><![CDATA[Marc Dole]]></category>
		<category><![CDATA[mito-kids]]></category>
		<category><![CDATA[MitoAction]]></category>
		<category><![CDATA[mitochondria]]></category>
		<category><![CDATA[portsmouth herald]]></category>
		<category><![CDATA[UMDF]]></category>

		<guid isPermaLink="false">http://mitokids.wordpress.com/?p=165</guid>
		<description><![CDATA[The Gossip Lady visits Hatchling and discusses Mito-Kids<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=mitokids.wordpress.com&amp;blog=6312902&amp;post=165&amp;subd=mitokids&amp;ref=&amp;feed=1" width="1" height="1" />]]></description>
			<content:encoded><![CDATA[<p>The Gossip Lady visits <a href="http://www.hatchling.com">Hatchling</a> and discusses <a href="http://www.mito-kids.com">Mito-Kids</a><br />
</br></br></p>
<span class='embed-youtube' style='text-align:center; display: block;'><iframe class='youtube-player' type='text/html' width='640' height='390' src='http://www.youtube.com/embed/QA8lFiBywCA?version=3&amp;rel=1&amp;fs=1&amp;showsearch=0&amp;showinfo=1&amp;iv_load_policy=1&amp;wmode=transparent' frameborder='0'></iframe></span>
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			<media:title type="html">mitokids</media:title>
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		<title>Mito-Kids wins Best Documentary NHFF 2009</title>
		<link>http://mitokids.wordpress.com/2009/10/20/mito-kids-wins-best-documentary-nhff-2009/</link>
		<comments>http://mitokids.wordpress.com/2009/10/20/mito-kids-wins-best-documentary-nhff-2009/#comments</comments>
		<pubDate>Tue, 20 Oct 2009 19:54:04 +0000</pubDate>
		<dc:creator>mitokids</dc:creator>
				<category><![CDATA[Uncategorized]]></category>
		<category><![CDATA[Alzheimer disease]]></category>
		<category><![CDATA[autism spectrum disorders]]></category>
		<category><![CDATA[award]]></category>
		<category><![CDATA[deaf]]></category>
		<category><![CDATA[diabetes]]></category>
		<category><![CDATA[Documentary]]></category>
		<category><![CDATA[epilepsy]]></category>
		<category><![CDATA[Marc Dole]]></category>
		<category><![CDATA[mito-kids]]></category>
		<category><![CDATA[MitoAction]]></category>
		<category><![CDATA[nhff]]></category>
		<category><![CDATA[UMDF]]></category>
		<category><![CDATA[Wanda Dole]]></category>

		<guid isPermaLink="false">http://mitokids.wordpress.com/?p=158</guid>
		<description><![CDATA[2009 NH DAY &#38; NIGHT WINNERS ANNOUNCED! &#8220;Crooked Lane&#8221; &#38; &#8220;Mito-Kids&#8221; Honored. NH Film Festival kicked off Thursday with a packed house at The Music Hall to see Marc Dole&#8217;s &#8220;Mito-Kids: Documenting Life&#8221; win NH Documentary Film of the Year and Chase Bailey&#8217;s &#8220;Crooked Lane&#8221; win NH Film of the Year. Both awards were determined [...]<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=mitokids.wordpress.com&amp;blog=6312902&amp;post=158&amp;subd=mitokids&amp;ref=&amp;feed=1" width="1" height="1" />]]></description>
			<content:encoded><![CDATA[<p>2009 NH DAY &amp; NIGHT WINNERS ANNOUNCED!<br />
&#8220;Crooked Lane&#8221; &amp; &#8220;Mito-Kids&#8221; Honored.</p>
<p>NH Film Festival kicked off Thursday with a packed house at The Music Hall to see Marc Dole&#8217;s &#8220;Mito-Kids: Documenting Life&#8221; win NH Documentary Film of the Year and Chase Bailey&#8217;s &#8220;Crooked Lane&#8221; win NH Film of the Year. Both awards were determined by the NH Jury.<br />
<img src="http://mitokids.files.wordpress.com/2009/10/img_0813.jpg?w=300&#038;h=225" alt="Mito-Kids 2009 Best NH Documentary" title="Mito-Kids 2009 Best NH Documentary" width="300" height="225" class="aligncenter size-medium wp-image-162" /><br />
In &#8220;Mito-Kids,&#8221; Dole, the owner and founder of Hatchling Studios, told the story of his four teenage daughters who have grown up with disabilities that stem from mitochondrial disease, a chronic, genetic disorder that occurs when the mitochondria of the cell fail to function properly.</p>
<p>Mito-Kids PRESS COVERAGE<br />
<a href="http://bit.ly/3D9wDc">Foster&#8217;s Daily Democrat</a><br />
<a href="http://www.seacoastonline.com/apps/pbcs.dll/article?AID=/20091016/ENTERTAIN/910169988">Seacoast Online</a><br />
</br></br></p>
<p>When Bailey&#8217;s name was called for &#8220;Crooked Lane,&#8221; the entire cast and crew joined him on stage, including stars Ann Cusack (&#8220;The Informant!&#8221;), Brett Cullen (&#8220;Lost&#8221;), Eliya-Quaye Constance, 9, of Brentwood; Noa Siegel, 11, of Exeter; executive producer Mark Constance and co-producer Bethany Constance (parents to Eliya-Quaye).<br />
<div class="wp-caption aligncenter" style="width: 480px"><a href="http://www.nhfilmfestival.com/_img/09-PTS-chase-4press.jpg"><img alt="Crooked Lane" src="http://www.nhfilmfestival.com/_img/09-PTS-chase-4press.jpg" title="Crooked Lane" width="470" height="204" /></a><p class="wp-caption-text">Crooked Lane</p></div></p>
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			<media:title type="html">Mito-Kids 2009 Best NH Documentary</media:title>
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		<title>New Hampshire Screenings announced</title>
		<link>http://mitokids.wordpress.com/2009/10/06/new-hampshire-screenings-announced/</link>
		<comments>http://mitokids.wordpress.com/2009/10/06/new-hampshire-screenings-announced/#comments</comments>
		<pubDate>Tue, 06 Oct 2009 16:13:27 +0000</pubDate>
		<dc:creator>mitokids</dc:creator>
				<category><![CDATA[Uncategorized]]></category>
		<category><![CDATA[Alzheimer disease]]></category>
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		<description><![CDATA[Mito-Kids: Documenting Life will have 2 screenings at the 2009 NH Film Festival Oct 15-18 Mito-Kids schedule at NHFF Marc Dole and Hatchling also have 5 other films in the festival and will be sponsoring the Friday night party at the Gaslight. Please join us in this special screening of our short film &#8220;Mito-Kids:Documenting Life&#8221;. [...]<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=mitokids.wordpress.com&amp;blog=6312902&amp;post=153&amp;subd=mitokids&amp;ref=&amp;feed=1" width="1" height="1" />]]></description>
			<content:encoded><![CDATA[<p><img src="http://mitokids.files.wordpress.com/2009/10/mitokids_poster.jpg?w=691&#038;h=1024" alt="MitoKids_Poster" title="MitoKids_Poster" width="691" height="1024" class="alignright size-large wp-image-154" />Mito-Kids: Documenting Life will have 2 screenings at the 2009 NH Film Festival Oct 15-18</p>
<p><a href="http://newhampshire.bside.com/2009/films/mitokidsdocumentinglife_newhampshire2009">Mito-Kids schedule at NHFF</a></p>
<p>Marc Dole and Hatchling also have 5 other films in the festival and will be sponsoring the Friday night party at the Gaslight.</p>
<p>Please join us in this special screening of our short film &#8220;Mito-Kids:Documenting Life&#8221;.  We are continuing to raise awareness for the feature version of the film and your support is greatly appreciated.<br />
Marc &amp; Family</p>
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		<title>MITO-KIDS: to premiere at the 25th annual Boston Film Festival</title>
		<link>http://mitokids.wordpress.com/2009/09/15/mito-kids-to-premiere-at-the-25th-annual-boston-film-festival/</link>
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		<pubDate>Tue, 15 Sep 2009 01:09:04 +0000</pubDate>
		<dc:creator>mitokids</dc:creator>
				<category><![CDATA[family]]></category>
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		<description><![CDATA[The documentary film Mito-Kids will premiere on Sunday, September 20th at the 25th Annual Boston Film Festival hosted by Uma Thurman.<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=mitokids.wordpress.com&amp;blog=6312902&amp;post=143&amp;subd=mitokids&amp;ref=&amp;feed=1" width="1" height="1" />]]></description>
			<content:encoded><![CDATA[<div id="attachment_146" class="wp-caption alignright" style="width: 310px"><img class="size-medium wp-image-146" title="BFF_Selection_2009" src="http://mitokids.files.wordpress.com/2009/09/bff_selection_2009.jpg?w=300&#038;h=129" alt="Boston Film Festival 2009" width="300" height="129" /><p class="wp-caption-text">Boston Film Festival 2009</p></div>
<p>FOR IMMEDIATE RELEASE</p>
<p>MITO-KIDS: DOCUMENTING LIFE to premiere at the 25th annual Boston Film Festival</p>
<p>Boston, MA (Sept 15, 2009) The documentary film Mito-Kids will premiere on Sunday, September 20th at the 25th Annual Boston Film Festival. The film will play as part of a block of medical related documentaries covering Autism, Alzheimer&#8217;s Disease and stem cell research. The festival is open to the general public and festival organizers will be extending a special invitation to the Boston medical and medical research communities.</p>
<p>Mito-Kids is about the struggles, triumphs and everyday life of a family in which four teenage sisters have grown up with disabilities that stem from mitochondrial disease, a chronic, genetic disorder that occurs when the mitochondria of the cell fail to function properly. Marc Dole is the father of these four special young women and the film’s director. Marc’s children face challenges that include seizures, deafness, diabetes, immune disorders and severe learning and developmental disabilities. Yet despite these many challenges, Mito-Kids is an inspirational and relatable film about perseverance and family.</p>
<p>&#8220;I am very proud that our premiere will be in Boston because our family&#8217;s search for answers about mitochondria started at Childrens Hospital in Boston over 15 years ago.&#8221; said filmmaker and father Marc Dole.</p>
<div id="attachment_147" class="wp-caption alignleft" style="width: 310px"><img class="size-medium wp-image-147" title="Mito-KidsPostcard" src="http://mitokids.files.wordpress.com/2009/09/mito-kidspostcard.jpg?w=300&#038;h=214" alt="Mito-KidsPostcard" width="300" height="214" /><p class="wp-caption-text">Mito-KidsPostcard</p></div>
<p>As a father and a filmmaker, Marc has shot close to 100 hours of home video, beginning with the birth of his first daughter 19 years ago. The story starts before mitochondrial conditions were even a mention at medical conferences, let alone an area of genetic study. Mito-Kids follows the family through holidays and family vacations, seizures and hospital stays. Interviews with medical experts explain the role of mitochondria in producing cellular energy and reveal what happens to the human body when these cellular powerhouses fail. The incidence of mitochondrial disease is estimated at 1:3000-4000 individuals in the US and yet the disease is relatively unheard of in the public sector and poorly understood in the medical community. Mito-Kids aims to increase the understanding of mitochondrial disease and its connection to epilepsy, diabetes, ALS, Parkinson&#8217;s, Alzheimer&#8217;s, Heart Disease and many other neurological disorders.</p>
<p>The screening of the film will take place September 20th at 11am at the Kendall Square Cinema along with the medical documentaries Hope Deferred, The Sundowners, and A Vision of Wholeness.</p>
<p>About Filmmakers</p>
<p>Marc Dole, Producer/Director/Father of 4 daughters with mitochondrial disease. Marc is the owner and founder of the award winning Hatchling Studios, an alumni member of the New Hampshire Film Commission, Speaker, Panelist and Filmmaker. His films, including Tweet, The Toll, Endurance Challenge, and The Norman Rockwell Code, have screened at over 100 film festivals, with 14 “best of” awards.</p>
<p>Karlina Lyons, Producer. Karlina has more than 15 years of experience working in international and domestic media production, focusing on producing educational content for children and families. From 1998 until 2005 she worked in the International Production Division of Sesame Workshop. She is currently a consulting producer for the Cambodian Educational Media Initiative (CEMI), a partnership between WGBH and the global NGO World Education.<br />
<a title="www.Mito-Kids.com" href="http://www.Mito-Kids.com" target="_blank">www.Mito-Kids.com</a></p>
<p>About Boston Film Festival</p>
<p>The 2009 Boston Film Festival celebrates a Landmark year with a distinct program of films on September 18-24 at the Kendall Square Cinema. A schedule of feature films, documentaries and shorts will be presented at the 25th festival. Filmmakers, actors and supporters have the opportunity to network at various events hosted by Boston’s signature restaurants throughout the week. A variety of awards are given annually. As the origin of many illustrious storytellers, the region provides an idyllic setting to experience a festival of motion pictures. The BFF is &#8220;quickly finding its place alongside the great film festivals of America.&#8221;  The BFF has premiered 25 years of remarkable films such as; American Beauty, North Country, The Piano, Reservoir Dogs, Jesus Camp, The Ground Truth, Flash of Genius, Grace is Gone, Trade and many others. Additionally, a vast list of directors and talent have participated at the festival including; Greg Kinnear, George Clooney, Dane Cook, Sam Mendes, Sir Ridley Scott, Jerry Weintraub, Alison Eastwood, Robin Tunney, and many more. The Boston Film Festival is dedicated to supporting evolving filmmakers by providing a forum to showcase their artistic vision.<br />
<a title="Boston Film Festival" href="http://www.bostonfilmfestival.org" target="_blank">http://www.bostonfilmfestival.org</a></p>
<p>Press contact:<br />
Karlina Lyons<br />
<a title="mitokids@gmail.com" href="mailto:mitokids@gmail.com">mitokids@gmail.com</a><br />
<a title="www.Mito-Kids.com" href="http://www.mito-kids.com/" target="_blank">www.Mito-Kids.com</a></p>
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		<title>Mito-Kids: Documenting Life is complete</title>
		<link>http://mitokids.wordpress.com/2009/05/06/mito-kids-documenting-life-is-complete/</link>
		<comments>http://mitokids.wordpress.com/2009/05/06/mito-kids-documenting-life-is-complete/#comments</comments>
		<pubDate>Wed, 06 May 2009 14:51:05 +0000</pubDate>
		<dc:creator>mitokids</dc:creator>
				<category><![CDATA[Uncategorized]]></category>
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		<description><![CDATA[The short version of our documentary was completed today and is starting to go out to film festivals, and media outlets. We are planning private screenings in Portsmouth and Boston to help raise funds for the film. If you want to recommend a festival or a journalist to send it to please email us their [...]<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=mitokids.wordpress.com&amp;blog=6312902&amp;post=142&amp;subd=mitokids&amp;ref=&amp;feed=1" width="1" height="1" />]]></description>
			<content:encoded><![CDATA[<p>The short version of our documentary was completed today and is starting to go out to film festivals, and media outlets.<br />
We are planning private screenings in Portsmouth and Boston to help raise funds for the film.</p>
<p>If you want to recommend a festival or a journalist to send it to please email us their contact info mitokids@gmail.com</p>
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		<title>Portsmouth Herald Article #2 Film documents local family&#8217;s struggle with genetic disorder</title>
		<link>http://mitokids.wordpress.com/2009/04/22/portsmouth-herald-article-2-film-documents-local-familys-struggle-with-genetic-disorder/</link>
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		<pubDate>Wed, 22 Apr 2009 19:10:17 +0000</pubDate>
		<dc:creator>mitokids</dc:creator>
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		<description><![CDATA[from The Portsmouth Herald http://www.seacoastonline.com/articles/20090421-LIFE-904210301 Film documents local family&#8217;s struggle with genetic disorder MORE INFO For information about the film and upcoming fund-raisers, visit www.Mito-Kids.com or write to mitokids@gmail.com. By Jeanné McCartin features@seacoastonline.com April 21, 2009 6:00 AM Triage is not a word commonly used in most households. But it is at the Dole home. [...]<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=mitokids.wordpress.com&amp;blog=6312902&amp;post=139&amp;subd=mitokids&amp;ref=&amp;feed=1" width="1" height="1" />]]></description>
			<content:encoded><![CDATA[<p>from The Portsmouth Herald</p>
<p><a href="http://www.seacoastonline.com/articles/20090421-LIFE-904210301">http://www.seacoastonline.com/articles/20090421-LIFE-904210301</a></p>
<h2>Film documents local family&#8217;s struggle with genetic disorder</h2>
<p><img class="alignleft" title="Marc and Britney" src="http://images.seacoastonline.com/apps/pbcsi.dll/bilde?Site=SO&amp;Date=20090417&amp;Category=NEWS&amp;ArtNo=90417022&amp;Ref=AR&amp;MaxW=570&amp;MaxH=370&amp;title=1&amp;border=4" alt="" width="405" height="271" /></p>
<p>MORE INFO<br />
For information about the film and upcoming fund-raisers, visit <a title="www.Mito-Kids.com" href="http://www.Mito-Kids.com">www.Mito-Kids.com</a> or write to <a href="mailto:mitokids@gmail.com">mitokids@gmail.com</a>.</p>
<p>By Jeanné McCartin<br />
<a href="mailto:features@seacoastonline.com">features@seacoastonline.com</a><br />
April 21, 2009 6:00 AM</p>
<p>Triage is not a word commonly used in most households. But it is at the Dole home.</p>
<p>&#8220;It&#8217;s medical and education triage, for whoever needs it the most that day,&#8221; says filmmaker Marc Dole, owner and founder of Hatchling Studios, a Portsmouth-based animation company.</p>
<p>Marc and Wanda Dole, who live in Nottingham, met in high school and had their first child while both were 19. Today they have four daughters, all with mitochondrial disease — a chronic, genetic disorder that occurs when cell mitochondria fail to function properly.</p>
<p>Marc Dole is completing &#8220;Mito-Kids: Introduction,&#8221; a short documentary on his family&#8217;s life and daily challenges. &#8220;Mito-Kids&#8221; is no ordinary film for a number of reasons. For starters Dole hopes it will help &#8220;brand&#8221; the disease, like so many diseases that have &#8220;star power&#8221; behind them to get the message out.</p>
<p>It&#8217;s also a fund-raising tool for a full-length version, with the intent that both it and the short film will help educate the public and attract research funds.</p>
<p>But &#8220;Mito-Kids&#8221; is most unique for the clips taken from more than 100 hours of the Dole family&#8217;s home videos, shot over the past two decades. They start, like so many, capturing the joy of a first child&#8217;s birth, and later the three younger siblings. But it also chronicles the developing health issues caused by an illness, undiagnosed or misdiagnosed for years.</p>
<p>The footage includes holidays and family vacations and seizures and hospital stays and will include interviews with medical experts and original animation.</p>
<p>The list of individual challenges differs with each Dole child. As a family they deal with seizures, deafness, diabetes, immune disorders and severe learning and developmental disabilities.</p>
<p>The two oldest Doles are &#8220;medically sensitive.&#8221; &#8220;It&#8217;s a word my wife uses,&#8221; he explains. &#8220;It just means at any given time, my older two girls Britney (19) and Nikiya (17) could have a seizure and their heart could stop. AND the heart could stop because of the medication we give for the <em>seizure</em>. It&#8217;s a crazy thing.&#8221;</p>
<p>Crazier was not knowing what afflicted their girls. They were still unaware at the time the twins were born, Ashley and Alyssa, now 15.</p>
<p>When the children were diagnosed in 1994, they were told there were only 290 families dealing with it in the United States. As for families with multiple mito-kids, with widely varying effects, &#8220;You couldn&#8217;t Google it in 1994,&#8221; says Dole. &#8220;So we didn&#8217;t know there were others out there until about a year ago when I started researching again.&#8221;</p>
<p>Still little is known of the disease, or why individuals are affected so differently. Dole said he looks at the differences in his daughters&#8217; lives and wonders what tipped which scale. The two oldest lived their earlier years in a house with radon, discovered only they moved, and have different vaccination histories than the two youngest.</p>
<p>One twin is deaf, the other hard of hearing, both are diabetic and have other health issues. But neither have seizures and both are developmentally normal. Did the radon and vaccination differences alter the disease&#8217;s effect?</p>
<p>&#8220;This is what I&#8217;m trying to find out in the documentary. Does it matter? Was it chance?&#8221; he says. &#8220;I don&#8217;t want to be known as the leader of the disease but I want to get the story out there. &#8230;; And it can help (others affected) by letting them know they&#8217;re not the only ones dealing. For 10 years, we thought we were.&#8221;</p>
<p>These days the Dole family home videos are being edited and logged, while additional filming of experts is being done. The short will be finished in time for submission to the Cannes Film Festival&#8217;s Short Film Corner.</p>
<p>Dole has received an intent-to-broadcast letter from New Hampshire Public Television. The New Hampshire ABC affiliate, WMUR-TV 9 has aired the first of four planned behind-the-scenes news pieces about the project.</p>
<p>Last Sunday, Dole started to work the short film&#8217;s voiceovers. Shortly into it he choked up, he said. &#8220;I thought, &#8216;That&#8217;s right. This is me. &#8230;; I just talked about my daughters,&#8221; he says. &#8220;For us, a lot of this is just getting to the next point and getting through what you&#8217;re doing.&#8221;</p>
<p>Right now he&#8217;s ready to get this out there; he&#8217;s ready for some answers.</p>
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		<title>Mito-Kids Fundraiser Article in Herald</title>
		<link>http://mitokids.wordpress.com/2009/04/17/mito-kids-fundraiser-article-in-herald/</link>
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		<pubDate>Fri, 17 Apr 2009 17:53:02 +0000</pubDate>
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		<description><![CDATA[from The Portsmouth Herald http://www.seacoastonline.com/articles/20090417-NEWS-90417022 WHAT: Mito Kids Zumba with Angela Fund-raiser WHERE: The Rockingham Ballroom, 22 Ash Swamp Road, Newmarket WHEN: Friday, April 17; 6 to 7 p.m. COST: $6 WEAR: Loose, comfortable clothes INFO: About the film and upcoming fund-raisers, www.mito-kids.com or write to mitokids@gmail.com By Jeanné McCartin features@seacoastonline.com April 17, 2009 11:33 [...]<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=mitokids.wordpress.com&amp;blog=6312902&amp;post=134&amp;subd=mitokids&amp;ref=&amp;feed=1" width="1" height="1" />]]></description>
			<content:encoded><![CDATA[<p>from The Portsmouth Herald</p>
<p><a href="http://www.seacoastonline.com/articles/20090417-NEWS-90417022">http://www.seacoastonline.com/articles/20090417-NEWS-90417022</a></p>
<p><img class="alignleft" title="Marc and Britney" src="http://images.seacoastonline.com/apps/pbcsi.dll/bilde?Site=SO&amp;Date=20090417&amp;Category=NEWS&amp;ArtNo=90417022&amp;Ref=AR&amp;MaxW=570&amp;MaxH=370&amp;title=1&amp;border=4" alt="" width="405" height="271" /></p>
<p>WHAT: Mito Kids Zumba with Angela Fund-raiser</p>
<p>WHERE: The Rockingham Ballroom, 22 Ash Swamp Road, Newmarket</p>
<p>WHEN: Friday, April 17; 6 to 7 p.m.</p>
<p>COST: $6</p>
<p>WEAR: Loose, comfortable clothes</p>
<p>INFO: About the film and upcoming fund-raisers, www.mito-kids.com or write to <a href="mailto:mitokids@gmail.com">mitokids@gmail.com</a></p>
<p>By Jeanné McCartin<br />
features@seacoastonline.com<br />
April 17, 2009 11:33 AM</p>
<p>Triage is not a word commonly used in most households. But it is at the Dole home.</p>
<p>“It’s medical and education triage, for whoever needs it the most that day,” says filmmaker Marc Dole, owner and founder of Hatchling Studios, a Portsmouth-based animation company.</p>
<p>Marc and Wanda Dole, who live in Nottingham, met in high school and had their first child while both were 19. Today they have four daughters, all with mitochondrial disease — a chronic genetic disorder that occurs when cell mitochondria fail to function properly.</p>
<p>Marc Dole is completing “Mito-Kids: Introduction,” a short documentary on his family’s life and daily challenges. The Mito-Kids Zumba with Angela Fund-raiser, in support of the film’s production, is scheduled for Friday, April 17 at the Rockingham Ballroom in Newmarket.</p>
<p>“Mito-Kids” is no ordinary film for a number of reasons. For starters Dole hopes it will help “brand” the disease, like so many diseases that have “star power” behind them to get the message out.</p>
<p>It’s also a fund-raising tool for a full-length version, with the intent that both it and the short film will help educate the public and attract research funds.</p>
<p>But “Mito-Kids” is most unique for the clips taken from more than 100 hours of the Dole family’s home videos, shot over the past two decades. They start, like so many, capturing the joy of a first child’s birth, and later the three younger siblings. But it also chronicles the developing health issues caused by an illness, undiagnosed or misdiagnosed for years.</p>
<p>The footage includes holidays and family vacations and seizures and hospital stays and will include interviews with medical experts and original animation.</p>
<p>The list of individual challenges differs with each Dole child. As a family they deal with seizures, deafness, diabetes, immune disorders and severe learning and developmental disabilities.</p>
<p>The two oldest Doles are “medically sensitive.” “It’s a word my wife uses,” he explains. “It just means at any given time, my older two girls Britney (19) and Nikiya (17) could have a seizure and their heart could stop. AND the heart could stop because of the medication we give for the heart. It’s a crazy thing.”</p>
<p>Crazier was not knowing what afflicted their girls. They were still unaware at the time the twins were born, Ashley and Alyssa, now 15.</p>
<p>When the children were diagnosed in 1994, they were told there were only 290 families dealing with it in the United States.</p>
<p>As for families with multiple mito-kids, with widely varying effects, “You couldn’t Google it in 1994,” says Dole. “So we didn’t know there were others out there until about a year ago when I started researching again.”</p>
<p>Still little is known of the disease, or why individuals are affected so differently. Dole said he looks at the differences in his daughters’ lives and wonders what tipped which scale. The two oldest lived their earlier years in a house with radon, discovered only they moved, and have different vaccination histories than the two youngest.</p>
<p>One twin is deaf, the other hard of hearing, both are diabetic and have other health issues. But neither have seizures and both are developmentally normal. Did the radon and vaccination differences alter the disease’s effect?</p>
<p>“This is what I’m trying to find out in the documentary. Does it matter? Was it chance?” he says. “I don’t want to be known as the leader of the disease but I want to get the story out there. … And it can help (others affected) by letting them know they’re not the only ones dealing. For 10 years, we thought we were.”</p>
<p>These days the Dole family home videos are being edited and logged, while additional filming of experts is being done. The short will be finished in time for submission to the Cannes Film Festival’s Short Film Corner.</p>
<p>Dole has received an intent-to-broadcast letter from New Hampshire Public Television. The New Hampshire ABC affiliate, WMUR-TV 9 has aired the first of four planned behind-the-scenes news pieces about the project.</p>
<p>Last Sunday, Dole started to work the short film’s voiceovers. Shortly into it he choked up, he said. “I thought, ‘That’s right. This is me. … I just talked about my daughters,” he says. “For us, a lot of this is just getting to the next point and getting through what you’re doing.”</p>
<p>Right now he’s ready to get this out there; he’s ready for some answers.</p>
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